NW London community based specialist palliative care for adults next steps 6 September 2023

We would like to say thank you to everyone who attended the event.  Their thoughts and feedback will be used as evidence as we move forward to develop the future model of care.

View the recording of the meeting

View the presentation

Key highlights

  • Jane Wheeler noted in the introduction and presentation that the engagement on the model of care had highlighted an error within the document on bed modelling, which should refer to 57 not 56 beds. She also stated that people had mentioned there was more detail given at the events than in the document on, for example enhanced beds, and that the NHS NW London team would look to further develop the content within the revised document.
  • Questions were asked about the community specialist care team and whether it is principally nursing or a full multidisciplinary team.
  • An attendee asked whether the model of care should involve a virtual ward offer.
  • The importance of advanced care planning was highlighted and the need for end of life discussions to start before someone becomes seriously ill, so they can get their preferences on record while they still have capacity.
  • Question asked about whether sufficient staff would be available to deliver the model of care.
  • How the care at home services will balance the planned aspects of care with requests requiring a more urgent response and how discharges will be supported from acute into community homes?
  • Whether the 2.1 million population figure for NW London given within the document is accurate?
  • How we will seek to balance patient choice vs patient need within the system
  • The importance of developing KPIs within the model of care and unifying data sets collected by different providers to achieve this.
  • How service navigation will be communicated to service users (given complexity of provider and service landscape).
  • Whether the national two-hour rapid response time is adequate and whether there is any consideration about medical training for hospice at home, carers, or for the people looking after the patients at home to be able to administer pain relief safely?
  • Whether both users and professionals have emphasised the need for geographically close access to services for residents.
  • Whether the model of care has built in resource allocations or budgets to give staff more time to support patients with, for example, advanced care planning. 
  • Whether patients can contact rapid response services directly or whether this requires a healthcare led referral.

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